Progeria

Photos of the Year: Behind the Images

On assignment for The Wall Street Journal, photographer Aaron Vincent Elkaim traveled to the home of Devin Scullion in Hamilton, Ontario, where the boy with the rare disease progeria lives with his family.

"Forever in my heart. Tomorrow will not be the same without you, thank you for allowing me to be your mother," Jamie Madley wrote on social media after the death of her son, Devin Scullion, a Hamilton man with a rare genetic disorder that causes rapid aging.

Hamilton man with rare rapid aging disorder dies

"Forever in my heart. Tomorrow will not be the same without you, thank you for allowing me to be your mother," Jamie Madley wrote on social media after the death of her son, Devin Scullion, a Hamilton man with a rare genetic disorder that causes rapid aging.

Rare Aging Disease Kills 2nd-Oldest Patient #Weird #WeirdNews

Canadian Devin Scullion died Sunday at age 20

Devin Scullion has defied the odds more times in his 19 years than most will in an entire lifetime. Doctors said his rare disorder would kill him by age 12. He's turning 20 in two months.

Hamilton teen with rare aging disorder vows to ‘keep fighting’

Devin Scullion has defied the odds more times in his 19 years than most will in an entire lifetime. Doctors said his rare disorder would kill him by age He's turning 20 in two months.

Devin Scullion's optimistic outlook on life, while living with a rare genetic condition, left a lasting impression on those he encountered in his short life.  The Hamilton man, who had the rare rapid aging disorder progeria, died at the age of 20.

How Devin Scullion, Hamilton man with rare rapid aging disorder, is being remembered

Devin Scullion's optimistic outlook on life, while living with a rare genetic condition, left a lasting impression on those he encountered in his short life. The Hamilton man, who had the rare rapid aging disorder progeria, died at the age of

A Hamilton, Ont., teen who has a rare disorder that causes premature aging continues to defy the odds thanks to a clinical trial that has allowed him to live years beyond the average life expectancy.

Devin Scullion has died at the age of after surpassing the average life expectancy for people with a rare rapid aging genetic disorder called progeria.

Canadian Devin Scullion died Sunday at age 20

Canadian Devin Scullion died Sunday at age 20

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