Institutional care

Collection by My Alzheimer's Story

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My Alzheimer's Story
25 pics that prove my mom was neglected and abused in long-term care Long Term Care, Go Getter, My Mom, The Twenties, Love Her, Medical, Medicine, Med School

25 pics that prove my mom was neglected and abused in long-term care

My mom was a go-getter, she loved to be on the move. Even when she had been living with advancing Alzheimer disease for several years, she told me clearly and directly that she wanted to “kee…

she couldn't sing because she was sedated Living With Dementia, Mom Died, Miss You Mom, Care Worker, Long Term Care, Singing, Miss U Mom

she couldn’t sing because she was sedated

My mother, who lived with dementia, was chemically and physically restrained every day for the forty-five months she lived in a dementia jail (aka a long-term care facility or nursing home). These …

50 pics that prove my mom was neglected and abused in long-term care Long Term Care, My Mom

50 more pics that prove my mom was neglected and abused in long-term care

If you don’t have proof, you won’t be believed. Sometimes, even if you DO have proof, you are not believed. I learned that when I went to court to try to get control of my mother’…

who is responsible when people living with dementia are robbed of their dignity in long-term care? I Need To Pee, Director Of Nursing, Living With Dementia, Frozen Shoulder, Dementia Care, Nursing Notes, Long Term Care, Trigger Points, Lie To Me

who is responsible when people living with dementia are robbed of their dignity in long-term care?

Of the roughly seven hundred entries on seventy-five pages of nurses notes I was sent leading up to the court case I had initiated to try to get legal control of my mother’s care, the only one that…

hail mary i need to pee Mary I, Hail Mary, Questions To Ask, This Or That Questions, Do Fantasy, I Need To Pee, Long Term Care, My Poetry

hail mary i need to pee

In March 2017, I wrote an open letter to Québec’s Minister of Health regarding the rationing of incontinence products in the province’s long-term care facilities. The letter includes a …

Family care partner Nicole Jaouich visited her mother Hilda Zlatoroff in a Quebec long-term care facility every day for 6 years to help her eat and drink; her mother’s eyesight was fai… Living With Dementia, Alzheimer's And Dementia, Long Term Care, Old Mother, Old Age, Caregiver, 6 Years

hilda zlataroff should have died of old age

Family care partner Nicole Jaouich visited her 102-year-old mother Hilda Zlatoroff in a Quebec long-term care facility every day for 6 years to help her eat and drink; her mother’s eyesight was fai…

The bulge at the front of Mom’s pants drove me nuts. “What a crappy design,” I thought to myself ironically each time I saw her, which was every day, religiously. She’d alwa… Long Term Care, Nursing Students, Day, Student Nurse

incontinence pads put on backwards every day for four years in long-term “care”

The bulge at the front of Mom’s pants drove me nuts. “What a crappy design,” I thought to myself ironically each time I saw her, which was every day, religiously. She’d alwa…

“Your mom’s been weepy and anxious since I got here this afternoon,” Nurse Ratched* said as I approached. She was writing notes in a binder that lay on top of the meds cart. Director Of Nursing, Vital Signs, Care Worker, Long Term Care, Good Spirits, Anxious, Feel Better, Sayings, Lyrics

the story of the dirty pull-up

“Your mom’s been weepy and anxious since I got here this afternoon,” Nurse Ratched* said as I approached. She was writing notes in a binder that lay on top of the meds cart. I stopped beside her. “…

stories of family members being banned and restricted by long-term care facilities make canadian national news Living With Dementia, Care Worker, Long Term Care, To My Mother, News

stories of family members being banned and restricted by long-term care facilities make canadian national news

On February 26, 2015, I received a registered letter from the facility in which my mom had resided for two and a half years requesting that I limit my visits to my mother to between the hours of 1 …

This is another in the series of vignettes I’ve create based on the Nursing Home Behaviour Problem Scale (NHBPS), which is used to measure agitation in people who live with dementia. The vignettes … Alzheimer Care, Alzheimers, Walk A Mile, Drug Free, Vignettes, Walking, Shoes, Shoe, Shoes Outlet

walk a mile in my alzheimer’s shoes

This is another in the series of vignettes I’ve create based on the Nursing Home Behaviour Problem Scale (NHBPS), which is used to measure agitation in people who live with dementia. The vignettes …

like one flew over the cuckoo’s nest Go Pear Shaped, Junkyard Dog, Should Have Known Better, Alzheimer's And Dementia, Maybe One Day, Medical History, Jack Nicholson, Her Smile, Call Her

like one flew over the cuckoo’s nest

I should have known better than to invite my photographer friend Edith to do a day-in-the-life photoshoot of Mom and I on a Friday. I had intended for Edith to capture in images the wonderful time …

Many of the comments people make on my posts, and the stories they send me by email and snail mail break me heart. Some literally bring me to tears. Open Letter, Fun Loving, Great Stories, My Heart Is Breaking, Vulnerability, To Tell, Drugs, It Hurts, Shit Happens

drugged & drooling

Many of the comments people make on my posts, and the stories they send me by email and snail mail break me heart. Some literally bring me to tears. This is one of them – a comment CL made when I p…

20 actions to foster and maintain dignity in dementia care homes Living With Dementia, Forms Of Dementia, The Cure, Dignity In Care, Dementia Care Homes, Mental Health Illnesses, Aged Care, Nursing Care

20 actions to foster and maintain dignity in dementia care homes

I was thrilled to learn that Australian dementia care advocate, author and activist Kate Swaffer included an excerpt from my “open letter to the dementia care community worldwide” in her statement …

July was a scorcher. And when I went to visit Mom in the afternoon, the heat made the stench of the dressing on her leg even more disgusting than it otherwise might have been. I gagged. Wound Care, Long Term Care, Just The Way, Washing Clothes, Be Still

i still smell the stench

July 13, 2016, was a scorcher. And when I went to visit Mom in the afternoon, the heat made the stench of the dressing on her leg even more disgusting than it otherwise might have been. I gagged. I…

i tell my mom’s story to help improve dementia care worldwide Dementia Care, Medical Research, Elderly Care, Personal Hygiene, S Stories, Alzheimers, Caregiver, Mental Illness, Tell Me

i tell my mom’s story to help improve dementia care worldwide

I strongly believe that people who live with dementia and their care partners need to speak out and tell their stories if dementia care is ever to reach the standard it should be at in Canada and a…

people living with dementia prove the medical model wrong Living With Dementia, Forms Of Dementia, Dementia Care, Feeling Trapped, Putting On Makeup, Nursing Care, Elderly Care, Personal Hygiene, Colorful Drawings

people living with dementia prove the medical model wrong

People living with dementia are LIVING. They are not dead, or gone or empty shells. They are people with abilities, skills, wants, needs, feelings, and if we help them, purpose! It’s time to …