Life and living

Collection by My Alzheimer's Story

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My Alzheimer's Story
5 things that may help when you and/or your care partner feel lost and confused Dementia Care, Alzheimer's And Dementia, Feeling Trapped, Feeling Lost, Living With Dementia, My Struggle, Tough Times, You Tried, 5 Things

5 things that may help when you and/or your care partner feel lost and confused

During the first two years Mom was in dementia jail, she was still able to walk. I would often bring her to my house (which was a three-minute drive up the hill), for supper, a music session or jus…

alone: a heartbreaking poem by lilly who lives with dementia Anxiety And Anger, Living With Dementia, Sad Poems, Feeling Lonely, Losing Me, Year Old, Give It To Me, Poetry, Things To Come

alone: a heartbreaking poem by 89-year-old lilly who lives with dementia

September 8, 2019: “Do you want me to read you the really sad poem I wrote last week?” Lilly* asks. “Gee Lilly, I don’t know,” I say. “Not if it’s really s…

Kenny Chesney’s song While He Still Knows Who I Am is about love, connection and re-discovering a father-son relationship. It made me cry. It may make you cry as well. But does it send the ri… Are You My Mother, Kenny Chesney, Song One, Make You Cry, Open Letter, Father And Son, Be Still, Connection, Relationship

while he still knows who i am is beautiful and heart wrenching, but does it send the right message about love and connection?

Kenny Chesney’s song While He Still Knows Who I Am is about love, connection and re-discovering a father-son relationship. It made me cry. It may make you cry as well. But does it send the ri…

care partner struggles alone without support of loved one’s adult children Living With Dementia, Dementia Care, Adult Children, Alzheimers, My Heart Is Breaking, First Love, Old Things, Life, Puppy Love

care partner struggles alone without support of loved one’s adult children

Some of the stories I hear from care partners break my heart. Many find themselves in the same boat: being abused by their own family members who do little or nothing to contribute to the well-bein…

dementia care partner mom investigated for having daughter help with care Forms Of Dementia, Dementia Care, Nursing License, Who Is A Nurse, Nursing Care, Elderly Care, Social Services, Personal Hygiene, Primary Care

dementia care partner mom investigated for having daughter help with care

Catherine Bixenman-salesi, who is a member of the online dementia support group USAgainstAlzheimers, is the primary care partner to her mom who lives with Alzheimer disease. Catherine regularly sha…

singer songwriter jay allen holds on to his mom Video Sh, Country Music Artists, Singers, Jay, Bands, Life, Inspiration, Biblical Inspiration, Singer

singer songwriter jay allen holds on to his mom

Nashville country music artist and songwriter Jay Allen’s mother has early onset Alzheimer disease. He wrote about it here, and he sings live about it in his song Blank Stares in the video sh…

I am frustrated by the fact that what is self-evident to me (and to thousands of other family care partners) appears to be a mystery to care providers, and apparently also to a whole whack of polic… Living With Dementia, What Is Self, Mad, Mens Sunglasses, Study, How To Make, Life, Studio, Investigations

hundreds of studies make me mad as hell

I am frustrated by the fact that what is self-evident to me (and to thousands of other family care partners) appears to be a mystery to care providers, and apparently also to a whole whack of polic…

heaven can count December 2014, Counting, Heaven, Life, Sky, Heavens, Paradise

heaven can count

December 2014: “You’ve got good things for the, for the, for the, the, the, the….” Mom struggles. We’ve just finished a music session with Eric, and she wants to share how it impacted her. She come…

December In November I put Mom and her best friend Pia Roma in separate prisons. Pia went to the friend of a friend’s where she hid under the sofa in a cigarette-smoke-filled … Moms Best Friend, Best Friends, Prison, Bff, Beat Friends, Bestfriends

after i put them in prison, mom’s bff became mine

December 26, 2017: In November 2012, I put Mom and her best friend Pia Roma in separate prisons. Pia went to the friend of a friend’s where she hid under the sofa in a cigarette-smoke-filled …

a lively joyful spirit who loved to engage life Long Term Care, Sun Shine, Joyful, Spirit, Let It Be, Mom, Health, Life, Health Care

everyone should be helped to let the sun shine in

Mom was taken from her home on November 16, 2012, (the day our best wasn’t good enough), and “placed” in a long-term care facility (LTCF). Like every human being (whether they liv…

how mickey mouse keeps viv & gregg’s love alive Touching Stories, Greggs, First Night, Mickey Mouse, Disney Characters, Fictional Characters, Life, Baby Mouse, Disney Face Characters

how mickey mouse keeps viv & gregg’s love alive

Thanks to Gregg Viall for this touching story about his wife Viv, himself and Mickey Mouse. ~~~~~~~~~~~~~~~~~~~~~ One night, at the beginning of our journey with Alzheimer’s disease, my wife Viv wa…

We sat across from each other knees touching, face to face, hand in hand, heart to heart one day in August It was a day like most others, and not. We’d been in that room hundreds of times ove… Alzheimer Care, Drug Free, Heart, Face, Faces, Hearts

we hoped for a better end

We sat across from each other knees touching, face to face, hand in hand, heart to heart on a cool day in August 2015. We’d been in that room hundreds of times over the previous three years. We’d t…

There’s a woman I’ve never met on the other side of the world. Her name is Jane (not really, but let’s pretend); we connected online through the mutual friend of a friend’s friend. Jane’s partner, … Maybe For You, Connect Online, The Other Side, World, Movie Posters, Life, Film Poster, The World, Film Posters

this is for jane, and maybe for you too

There’s a woman I’ve never met on the other side of the world. Her name is Jane (not really, but let’s pretend); we connected online through the mutual friend of a friend’s friend. Jane’s partner, …

beauty, magic, grief and reflections on regret Beauty Magic, Caregiver, Regrets, Grief, Reflection

beauty, magic, grief and reflections on regret

“Tears are rolling down my cheeks,” Anita’s comment began after the link to “come to mummy anyway,” which I’d posted in an online caregiver support group. Her comment continued: “My husband Doug pa…

December Exactly when Mom acquired her little grey cat with the big yellow eyes is hard to say, but it was sometime after the spring of 2001 when Mom and I went to Rome on holiday for a w… Big Yellow, Yellow Eyes, Grey Cats, Life, Fictional Characters, Art, Art Background, Gray Cats, Kunst

the paws that refreshes

December 28, 2009: Exactly when Mom acquired her little grey cat with the big yellow eyes is hard to say, but it was sometime after the spring of 2001 when Mom and I went to Rome on holiday for a w…

5 raw emotions alzheimers dementia caregivers feel every day Dementia Care, Alzheimer's And Dementia, Primary Caregiver, Elderly Care, Personal Hygiene, Alzheimers, Feelings, Day, Articles

what a difference an E makes by c. stuart-cole

C. Stuart-Cole, whoever she or he is, is clearly brilliant. She or he has captured in this insightful and provocative drawing that is at once simple and complex, as well as heart breaking and motiv…