don't mourn me long

don’t mourn me long

what confusion felt like to my mom in the later stages of alzheimer disease

October Today I had reason to revisit a video I’d made in which Mom talks about how she feels about her state of mind. I don’t have words for the way in which I’m inspi…

The Latino Perspective on Alzheimers Dementia Caregiving? An Honour NOT a Burden

The Latino Perspective on Alzheimers Dementia Caregiving? An Honour NOT a Burden

a lively joyful spirit who loved to engage life

the main thing is to keep going

I’ve just picked up Mom to bring her to my place for our weekly healing music session with Eric, and I don’t know how I’m going to get h…

the heartbreaking reality of caring for someone with alzheimer

“What is it really like to deal with the reality of Alzheimer’s?” reads the Quora question. The short answer is: terrifying, demoralizing, exhausting, draining, all-consuming and thankless.

daughters, dementia and drugs: finding good on the road to forgiveness

daughters, dementia and drugs: finding good on the road to forgiveness

i think mom may be dying

April I think Mom may be dying. She lies in bed, her eyes closed and her mouth agape; It feels cold…

an alzheimer easter egg hunt

I had intended to leave home over the Easter weekend It was to be my second two-day respite after returning to live and care for Mom five and half months earlier.

my answer to a grandson's quora question

Quora is a site where people ask questions, and others answer. I’m often asked about Alzheimer disease. One day, I found this request in my inbox.

after i put them in prison, mom's bff became mine

after i put them in prison, mom’s bff became mine

Thanks to Gregg Viall for this touching story about his wife Viv, himself and Mickey Mouse. ~~~~~~~~~~~~~~~~~~~~~ One night, at the beginning of our journey with Alzheimer’s disease, my wife Viv wa…

We sat across from each other knees touching, face to face, hand in hand, heart to heart one day in August It was a day like most others, and not. We’d been in that room hundreds of times ove…

this is for jane, and maybe for you too

Her name is Jane (not really, but let’s pretend); we connected online through the mutual friend of a friend’s friend.

beauty, magic, grief and reflections on regret

“Tears are rolling down my cheeks,” Anita’s comment began after the link to “come to mummy anyway,” which I’d posted in an online caregiver support group.

161228 the paws that refreshes

December Exactly when Mom acquired her little grey cat with the big yellow eyes is hard to say, but it was sometime after the spring of 2001 when Mom and I went to Rome on holiday for a w…

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