Organisations patients/Patient organizations

Organisations de patients en maladies rares (alliances, regroupements, coalitions, organisations "parapluie", etc.) Patient organizations in the field of rare diseases (alliances, coalitions, umbrella organizations)
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OracleVoice: Big Data Is Good for Your Health, by Sharon Terry, Genetic Alliance (June

Home - NORD (National Organization for Rare Disorders)

NORD, a organization, is the leading patient advocacy organization dedicated to improving the lives of individuals and families living with rare diseases.

Canadian Organization for Rare Disorders

Canadian Organization for Rare Disorders

Eurordis, Rare Diseases Europe

Eurordis, Rare Diseases Europe

Organizations, Promise Rings

Home - Rare Disease Foundation

Home - Rare Disease Foundation

http://lnk02.com/v/443/6dfad566748b428ed32968d477bae118c65f3d465e20d9aa

http://lnk02.com/v/443/6dfad566748b428ed32968d477bae118c65f3d465e20d9aa

Rare Disease UK

Rare Disease UK (RDUK) is the national campaign for people with rare diseases and all who support them. We believe that everyone living with a rare disease should be able to receive high quality services, treatment and support.

Genetic Alliance UK

Genetic Alliance UK is the national charity working to improve the lives of patients and families affected by all types of genetic conditions.

Site web du Regroupement québécois des maladies orphelines Web site of Quebec Coalition of Orphan Diseases

Site web du Regroupement québécois des maladies orphelines Web site of Quebec Coalition of Orphan Diseases

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