My Latest Posts!
blogging, health blogger, spoonie, chronic illness, lyme, tickborne illness, PANDAS, PANDAS/PANS, autoimmunity, autoimmune illness, canada, sibo, small…
With the discrepancy in approaches for treating autoimmune encephalitis, a common question I get is where or to whom one should go to for treatment. This post details my experience with interdisciplinary care teams, and the things that worked + didn't work in my journey to get myself out of 2 relapses. #autoimmuneencephalitis #encephalitis #cyclophosphamide #actemra #rituxan #rituximab #tocilizumab #cytoxan #ivig #steroids #mycophenolatemofetil #cellcept
Many autoimmune encephalitis patients struggle to find adequate treatment for the illness, especially those who are seronegative or have a relapse. This post covers my experience finally getting treatment 5 years after I first fell sick. #autoimmuneencephalitis #encephalitis #neurology #psychiatry #rituximab #ivig #steroids #tocilizumab #actemra #rituxan #cyclophosphamide #cytoxan #cellcept #mycophenolatemofetil
This blog pulls the curtain back on what it's been like to get chemo; but more importantly, it’s a commentary on grief, mental framing, and acknowledging the heavy impact of having a rare and long-lasting illness. This will resonate with anyone who has had to fight the medical system, chase down treatments, and undergo intense treatments that come with no promises! #autoimmuneencephalitis #cytoxan #cyclophosphamide #chemo
The state of the autoimmune encephalitis (AE) field in 2022 as judged by a 3x AE survivor, concluding with 10 important but unanswered questions that we should be pushing our doctors harder to answer 🧠 #autoimmuneencephalitis #encephalitis #worldencephalitisday
If you or your loved one has a compromised immune system, it's worth taking the time to learn about #Evusheld. It provides protection against COVID infection for those who don't mount a full response to COVID vaccination. #immunocompromised #covid #protection
Many people deal with significant brain fog, yet it's a symptom that tends to be overlooked and dismissed. In this blog, we discuss a better framework for discussing the meaning of brain fog, and strategies for getting doctors to take you seriously.
It is a commonly accepted piece of advice that you shouldn’t compare yourself to others. But this has never resonated with me. In this post I explore the benefits of making healthy comparisons and using them as guideposts to better your own life.
When you live with a chronic illness, it can be hard to make sense of why you became ill in the first place and why you have to continue to live with the limitations that come with it. This blog focuses on a way to find meaning in your life despite those moments when everything seems pointless.